I just turned 25. People with Duchenne muscular dystrophy (DMD) aren't expected to see another birthday after this one. DMD is a progressive disease; my muscles weaken over time and things that used to be automatic now take planning, assistance, or simply aren't possible anymore. Even sleeping can be hard. Bed sores are now an issue. Basic physical function takes work most people never have to think about. I know what the statistics say. I am not ready to let them write the ending of my story. TRUMP FDA PICK REPEATEDLY SIDESTEPS SANDERS' UNIVERSAL HEALTHCARE DEMANDS IN HEATED CLASH I want to grow my career, I want to get married and start a family. Source: https://www.foxnews.com/opinion/im-25-terminal-disease-need-fda-commissioner-hears-people-like-me